It has been a while since I updated my blog. It just feels like nothing
new has happened since my last post.
For a while there, everything was
changing and transforming every day. Facial features, less pain, wait,
energy. But then, all of a sudden everything seemed to go back to how it
was before my surgery. Almost as if the surgery and everything that
followed was just a dream, and never really happened. I gained 15 pounds
back overnight, with no changes to my diet and with more exercise on my
plate. The joint pain came back, and worst of all my period came back.
Now, I am looking at scheduling a hysterectomy soon so that I do
not have to deal with the pain, discomfort, and the debilitating side
affects of my period.
With the acromegaly, one of the symptoms is
fibroids. I currently have two fibroids that are growing and growing,
and last check they were the size of baseballs if not a little bit
larger. If it wasn't for those little suckers, I would be fine and and
not looking at a hysterectomy in a month or so. I am sure that many of you think that I am
sharing too much information. But, after all, it is my blog. I get to say
what I want to! :-)
Other then the hysterectomy, I am also having my Button Surgery on
September 13. I get to get a button put on my kneecap (otherwise known as Patellar Resurfacing). This should
eliminate the pain and excessive swelling in my knee. By putting a
button on my kneecap, it will allow my kneecap to slide easily over my titanium knee so that I can move better. Right now, it sounds like a jiffy pop popcorn
maker is in my knee me every time I move. This surgery should also help
eliminate some of the other joint pain I am having for compensating for
my knees. So, next month and the following I will be undergoing some
more surgical procedures. Oh joy.
Going back to the acromegaly, my numbers at last check we're down, but
not where they need to be for me not to suffer from side effects. So,
until my number is it drop below 276, I will still have inflammation,
joint pain, potentially moving parts (such as I swear my jaw is still moving!). So, if you hear me tripping over my
words, or having a difficulty with annunciation, that is because I am still
suffering from some of the effects of that acromegaly. I will not know
if I need to be on medication to control my growth hormones until October. Until
then it is just a waiting game, a very annoying waiting game! For now,
that is all I have.
Patience isn't the easiest thing but we need it. Hope this is all behind you before you know it
ReplyDeleteUgh!!!! I'm right there with ya sweet friend. Keep hanging on. ;)
ReplyDeleteUgh!!!! I'm right there with ya sweet friend. Keep hanging on. ;)
ReplyDeleteSo hard to wait for so long to know that you may be OK or may need to be on meds.... and the jaw moving sorta freaks me out since it's a reminder that I am still a hormonal hot mess. 2 more months to MRI, and counting!
ReplyDeletePatience is not my strong suit. The weight gain is what I'm dealing with now but no more swelling, joint pain, headaches, apnea....all gone with surgery. I consider my self EXTREMELY lucky or blessed....or both! Hang in there Bella - all of this will be a bad memory some day!
ReplyDeletePatience is not my strong suit either - I want to know NOW that my numbers are down so much so that I had my PCP run my IGF-1 again, but since they use a different lab than U of M, it's not an adequate indication of where I am.... I still have the apnea, the joint pain is much less, though not gone (though we are working on that). I do consider myself lucky considering how high my numbers were - things could be much, much worse....
Delete